October 6, 2013.
Voices came pouring into my ear from my phone. I couldn’t understand the words. Something about my niece and sister. I had to be dreaming –
Jenna and Evelyn fell down the stairs. Evelyn is bleeding on the brain. She’s being airlifted right now. They’re taking her downtown. Do not bring Emma and Kate here. Where is Scott? She’s still alive as of right now. She was grey when Jenna and Steven got to the hospital with her. We don’t know. She needs a neurosurgeon. The pressure is building. The doctors and nurses are working as fast as they can. You can’t talk to Jenna right now. Your dad and I are here. It’s a race against time. There’s nothing we can do but wait.
My world fell apart. My body shut down. I felt nothing. I couldn’t feel hunger. Or thirst. I didn’t even feel sad. I was in shock. I fell into a world deeper than sadness. But I just watched her at my house. We played peek-a-boo in my driveway. I made her fly like an airplane into Emma and Kate’s faces. We waved at neighbors driving by. No. NO. DAMNIT, NO. Not her. She’s only 6 months old. This isn’t happening. This is not my life.
In the days following the accident, I wrote updates on Facebook to keep our family and friends updated. I was going outside my Facebook norms. My Facebook page is used for pictures of my kids, selfies and blog posts. I rarely post what I’m actually doing.
I felt like I was bothering people. I felt like people were rolling their eyes at the drama being put on their newsfeed. I didn’t care. I needed their prayers, happy thoughts, well wishes. I needed a higher force over Evelyn. My words spread. Friends, family, my 5th grade best friend, my former teachers, my DJ from our wedding, high school classmates that I haven’t talked to since high school, neighbors. Everyone. I heard from everyone. Evelyn had everyone in my world rooting for her. It’s all I could do.
I need every prayer and well wish in the world for my sweet baby niece, Evelyn. She suffered a head trauma accident this morning. Evelyn has bleeding on the brain. She was taken to Children’s Mercy downtown. I don’t know what to do other than ask for everyone to think of her now. Thank you.
Evelyn is out of surgery. They have stopped the bleeding and relieved the pressure off her brain. She has been moved to the PICU. The next 24 hours are critical – watching for blood clots. I’ll update you when we know more. Thank you, your prayers and well wishes got her through surgery.
Evelyn had a great night! She is doing as expected after head trauma surgery. She is swollen and sedated with every tube imaginable stuck in her. I am happy to report a male nurse put a pretty pink bow in her hair. It’s his first time at making a bow for a patient.
The nurses removed Evelyn’s catheter. She is using diapers now. She is still sedated, on a ventilator. She is kicking more in her sleep – good sign. She had a fever last night, it’s low grade now. They took blood and urine to see if there’s an infection. She was given more donated blood while I was in the room because her blood levels were getting low (not a big deal – doctor just wanted to top her off.) She is also getting Jenna’s breast milk in her feeding tube now. Evelyn squeezed my finger today. She fluttered her eyes open for Jenna and me. She says thank you, everyone!
Evelyn is a strong little girl. She kicked off her hand IV and leg IV last night. Nurses went ahead and took those out. They removed her head brace. Neuro gave the go to remove her ventilator. Sedation has been turned off. We are waiting for Evelyn to wake up so they can remove it. Should be very soon.
Evelyn is awake and alert. Starting procedure to remove ventilator. Please pray and think of her now.
She has been extubated. She didn’t like that very much, big tears rolling down her face. But she did great and she is calm now. Steven said she looks beautiful.
After 4 of the hardest days of my life, I got to play the sweetest, tear-filled game of peek-a-boo with Evelyn. She remembered her favorite game with Aunt Jules!! Her central line will be removed today and she will be transferred to a “regular” room. The leaks on her brain stayed in between her skull and first membrane over her brain. No permanent brain damage – she should continue to develop normally. Thank you for all thoughts and prayers! She’s getting there!
My Christmas wish – to watch Evelyn spend her first Christmas completely oblivious to her mountain of presents because she would rather play with the crumpled wrapping paper on the floor. I want to watch her laugh at her cousins, Emma, Kate and Gabby squealing at all the excitement. As soon as the presents are opened, I want to lift her up and bring my camera phone out in front of us. I’ll tap my phone. Then I’ll post the picture of my Christmas angel on Facebook. That’s all I ask this year.
Jenna, Steven, Evelyn and our family would like to thank you. We would also like to thank the wonderful miracle workers at Children’s Mercy – Kansas City. This Christmas will be extra special to our family because of all of you.